SIRM IVF Donations – Generosity or Exploitation?
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Given the enormous amount of attention that our recent “I Believe” Video “contest” attracted, the numerous comments made on our website and on Facebook, and the article posted on TIME Magazine’s website entitled “Baby Contest: Couples Compete for Free IVF — Is This Exploitation or Generosity?” , I feel compelled to add my own commentary.
First of all let me congratulate the three winners, two of whom I will be treating personally here in Las Vegas and one who will be treated by my partner, Dr. Saleh at SIRM-Dallas.
A little history is perhaps appropriate here. In the late 80’s we were struck by the fact that while IVF provided the only hope of having a baby to many couples, most of them could not afford the out of pocket expenses. So we started (at first randomly) to give away a few free IVF cycles to those in need. In order to remove ourselves from the selection process, we formed a “hardship” committee comprising couples that had been benefactors of prior free cycles through our program. I notified several infertility support groups such as Resolve in Northern California that they should advise potential candidates to apply to our hardship committee for participation. We did not in any way promote or advertise this service. The payoff for us was the fulfillment and enrichment that came through the act of giving.
Subsequently, upon moving from Northern California to Las Vegas, and becoming a member of the board of INCIID (InterNational Council on Infertility Information Dissemination), I helped the organization’s founder, Nancy Hemenway, to establish the “INCIID the Heart Program.” This program provides donated IVF treatment through participating clinics (including SIRM) to couples who couldn’t otherwise afford it. SIRM has never promoted or leveraged their participation in this program, instead letting INCIID have the spotlight. This program is still very much alive and thriving, and many of our doctors provide donated IVF cycles through it.
For many years, we contemplated the ethical and perceptual implications of donating IVF cycles directly to patients, and in 2010, we initiated the first cycle donations to patients at our educational seminars. Since then, we have granted approximately 30 donated IVF cycles at our seminars through a random drawing process. Many of these patients have subsequently gotten pregnant and given birth. Thus babies have been born through these donations – the ultimate payoff for all of us.
It was not until December 2011 that we launched “contests” through the SIRM Website and Facebook page that would provide donated IVF cycles. The first was an essay contest, in which each candidate was asked to detail their struggle to start or add to their family. Both SIRM patients and non-patients were eligible for participation, and three couples were awarded donated IVF cycles (we are happy to note here that that one of the IVF recipients from this contest is currently pregnant with twins).
So positive was the feedback we received from the essay contest that we decided to initiate a video contest in May 2012. As with the essay contest, both SIRM patients and non-patients were eligible to participate. The 45 entries were reviewed by a panel of six outside judges, from which six finalists were selected. These videos were posted on our website and Facebook Page with voting open to any and all visitors (with just one vote allowed per visitor).
The voting was close, and ultimately we decided to award IVF cycles to three couples rather than just one. Their videos can be viewed on our homepage at www.haveababy.com.
This contest was thoughtfully covered by Time Magazine writer and infertility advocate Bonnie Rochman, in the aforementioned article titled, “Baby Contest: Couples Compete for Free IVF — Is This Exploitation or Generosity? ” The article raised several questions regarding the motivation and intent surrounding the contest. While the response (as evidenced by numerous postings on the SIRM Facebook Page and website) was immediate and almost universally supportive, it is fair to say that some of the points raised in the article and by the naysayers were valid.
The article raised the question as to whether any judge would be equipped to assess “worthiness” based upon a four minute video alone, and (probably correctly) suggested that aesthetics and production skills, rather than merit alone were involved in choosing the winners.
Other comments suggested that a lottery system would have been more fair and questioned whether or not it might have been preferable to judge couples in categories based on age, reproductive history, primary or secondary infertility, sexual orientation, marital status, etc. One comment suggested that selection of winners might even include a face to face interview. Another questioned whether women with repeated miscarriages should be allowed to participate since they appeared to have no trouble conceiving and thus wouldn’t necessarily need IVF.
While all of the above and many others such comments certainly have merit, there are constraints under which such a contest can be conducted.
One comment suggested that the contest was purely self-serving and performed as a marketing ploy. This I would like to address further. It would be disingenuous to say that we didn’t consider the marketing and publicity merit for SIRM. This is a routine consideration in running a medical practice – or any business. A comment on our Facebook page by Terri Davidson put it well:
“Of course, they were going to use this contest for marketing and publicity. Every health care provider markets; it’s naive to think they don’t. But marketing also promotes education and public awareness. Marketing is not a dirty word…But here we are debating about the nuances of this so-called controversy, when instead we should be focusing on why only 14 states in the United States have mandated infertility insurance coverage and why residents of the other states have to enter contests, lotteries, giveaways, instead of being able to access the infertility treatment they deserve. That’s the real controversy.”
Yes, we hoped that the contest would promote SIRM and expand public awareness of the quality and diversity of our services, as well as the compassion of our staff and doctors who donate their time to perform these IVF cycles.
Was this “generosity or exploitation” and did SIRM exploit patients by giving away 3 cycles in the process of promoting our services? I accept that this is open to debate, but I would argue that we did not.
Another issue raised, was that while this “contest” benefited the winners, it also worsened the plight of the majority that did not win. Based upon most of the responses we received and also on feedback that I’ve received directly, it is in fact quite the contrary. Many of the applicants stated that they had gained a great deal from the “contest” even though they didn’t win. They expressed the fact that they felt, based upon the empathy received by so many others, that they were not alone, and that there was a great deal of support accessible to them.
Others stated that the “contest” made them aware that there is expertise available to help them to, perhaps “better address” their problem and that it created “an appreciation of the struggles others go through”.
One person informed me that even if they’d have known from the beginning that they would not win a free cycle, but that they would have access to such a support system, they would have gone ahead anyway.
Finally, while this is relatively uncharted territory, my experience over the years in donating treatments and discounting services through non-profit organizations, has convinced me that as long as we do this with the proper intent, with humility and with empathy, we are doing the right thing. And if in the process it attracts infertile couples to SIRM, this is not a bad thing. In the final analysis I would refer to the old adage ….. “What goes around comes around.”
10 Responses to “SIRM IVF Donations – Generosity or Exploitation?”
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I have said from the very beginning, and on all of the blogs and articles that have arisen since the contest, that I am very grateful for the opportunity that you have provided. In writing an essay, and creating a video as entries into the Facebook contests I have healed a little bit of the hurt I deal with on a daily basis. Just the knowledge that someone out there is reading my story lightens my burden a tiny bit.
Have I said that I don’t think the judgement is fair? Yes. Of course – it is at is’t very essence unfair, but so is infertility and nearly everything else in life. None of the participants were decieved about the process, and we all chose to submit entries knowing that the odds were against us. But, somone did win. Actually, 3 couples won and for those couples this is the ultimate gift. I strongly feel that, no matter what benefit SIRM receives from the contest, the winning couples stand to gain more – and there are many other things SIRM could do to promote itself.
I so hope that the negative comments you have received to not persuade you that these contests are a bad thing.
Thank you and please read my blog of today on IVFauthority.com on this topic.
Geoff Sher
At present we still intend to press on!
Thanks!
Geoff Sher
Glad to hear it! I apologize for the spelling and grammar errors – I was commenting from my mobile.
SIRM and Dr. Sher, I read the article mentioned along with all the comments. I think it’s sad that you have to (in a sense) defend your generosity. I hope the few negative opinions don’t ruin it for the many and I hope you continue to give hope to couples that need the help.
I don’t think it matters how the contest was judged. The fact is you did it to help people and I don’t understand how anyone can complain about that. We were one of the 45 couples that entered the contest. I learned about the contest the day before the deadline. I didn’t think I had much of a chance since I made my video in less than 10 hours, we aren’t married yet and we haven’t been trying for years; but I was grateful for at least a chance! We all have our stories of how unfair life has been for us regarding fertility. Before the contest, I was keeping my cancer and hysterectomy from the majority of people I know. I had only told my closest friends and family because there was some shame in the fact that I was no longer able to carry my own child. After making the video and posting it on Facebook, I received so much support and kind words it was overwhelming. I’m grateful I now have a video that documents my journey. I hope one day I can show my children… So THANK YOU and keep doing what you’re doing – I’ve learned you’ll never please everyone!
Completely agree with Mary. By making this video it allowed me to get out so much hurt that I was holding in. I also got to share the video with family and close friends and that really allowed them to see what we are going through for those who don’t understand infertility. Thank you for this opportunity. I am greatly looking forward to getting started with Dr. Ahlering soon!!
Dr. Sher,
I think the contest, as difficult as it was to judge, was a wonderful gift. Knowing you the way I do, there was never a doubt in my mind that your motives and intentions grew from the very best place (probably the same place that originally called you into this line of medicine).
I’ve learned over the past three years and our very unique situation that the internet, albeit a wonderful resource, can also be a venue for people to sling accusations and judge other’s actions not only harshly, but unfairly. I appreciate you clarifying your (and SIRM’s) motives, but know that most appreciated the contest.
The three couple’s who received the cycles are in my prayers as well as the 42 couples who didn’t. I believe, that with your help–free or not–they will find their way to the family of their dreams, one way or another!
All the best,
Carolyn Savage
Thank you Carolyn…much appreciated.
Love to your husband and kids!
Geoff Sher
Well here you have yet another person talking about infertility who knows ABSOLUTELY nothing about the actual experience.
It really bothers me that you are not able to give this away without someone writing an article trying to find fault in what you guys were trying to do.
No one held a gun to those people’s heads and said “share your story”! They did so because they wanted a chance at something that would normally cost them a lot of money.
It really bothered me that they made issue of you doing it strictly for profit. Who gives a flip if you did profit off of this? I wonder why this lady writes for time…do you want to bet she is not doing this out of the goodness of her heart. Money is what makes the world go round people. Making a profit is a good thing for everyone!
The profits you make probably allow you to have some pretty nice stuff personally BUT it also provides new equipment and the ability for you to do research into making IVF and ART procedures more successful!
I think it was great of you to offer this SHER. I don’t care about the reason. The end verdict is 3 LUCKY people get to have a chance at what they desperately want…A baby!
Thank you for your comments…much appreciated. I believe that next Tuesday there will be a CNN piece on an interview I did with them on this subject, yesterday.
Geoff Sher